Update on Fibrous Dysplasia

I thought I would do an update, since I haven't in awhile regarding my FD. I just went and saw the endocrinologist on Monday. She said that she can't really say if it's FD or not without a biopsy to confirm. I called the sinus specialist to see what we should do, and was able to get into to see him yesterday.

We discussed biopsy and waiting 6 months, then re-scanning to see if the mass has gotten bigger/changed. There are risks to both. If I get the biopsy, obviously it's surgery, and something could go wrong. They will be sticking a big needle up my nose, and going right pat my eye. So I could lose sight, or lose sense of smell. These are all the worst of the worst, but it's part of the risk. If I wait 6 months, the risk is that if it is cancer, it could spread. They have no reason to believe it's cancer, but no reason to believe it isn't either.

The sinus specialist doesn't believe it's FD, because it's really rare to have it only in that area. However, it's really rare to have cancer there also. It also could be a benign tumor. So really without a biopsy it's a crap-shoot. After weighing the options, I really don't care to wait 6 months. The unknown scares me more than the word cancer. I really don't want this looming over my head for the next 6 months, so I've decided to go ahead with the biopsy. It's scheduled for Sept. 15th. Let's hope I get some closure on this, and maybe some good news too :)

While I was at home, we got our family pictures taken by Heidi of Heidi Beth Photography. She is awesome, and worked so well with Bandit! She works out of Watseka and DeKalb, and if you pay her enough, she might even travel :) You really should check out some of her work on her FB page here. She's so talented!

-Brina